Books That Give Back
At Alpha Health Alliance, our books are more than just words on a page — they are a lifeline for those navigating the overwhelming world of rare, chronic, and genetic illness. Each title is written with purpose, truth, and compassion, offering guidance for patients, caregivers, advocates, and healthcare providers alike.
When you purchase one of our books, you're not only investing in knowledge — you're helping fund our nonprofit's free advocacy services, educational outreach, and support programs. Your support allows us to keep fighting for those who are often dismissed, misunderstood, or forgotten by the healthcare system.
These books were born from lived experience — and they exist to create lasting change.
“Empowering lives, one patient at a time.”
About the Author
Jonathon Andrew Adams is the founder and CEO of Alpha Health Alliance. After years of misdiagnoses, disbelief, and dismissal from the healthcare system, Jonathon was finally diagnosed with Alpha-1 Antitrypsin Deficiency — a rare genetic disorder. His personal struggle with chronic illness became the driving force behind his advocacy and nonprofit work.
Through Alpha Health Alliance and his writing, Jonathon speaks directly to the patient experience with clarity, honesty, and heart. His books challenge outdated systems, validate the realities of those often ignored, and give voice to people who need to be heard. Jonathon’s mission is to ensure that no one feels invisible in their fight for care, compassion, and dignity.
Whether you're a patient searching for answers, a loved one trying to understand, or a provider seeking to do better — these books are here to inform, inspire, and ignite change.
Survival Tips for Chronic Illness Warriors
Bite-Sized Wisdom, Comfort, and Strength for Life’s Hardest Days
This uplifting guide offers small, powerful insights for chronic illness warriors who need a reminder that they’re not alone. Filled with encouragement, practical strategies, and grounded support, it's a go-to companion for everyday battles.
Buy on Amazon: https://www.amazon.com/stores/Alpha-Health-Alliance/author/B0F6M83N4B
Membership Has Its Perks
Laughing Through Life with Chronic Illness
A lighthearted but honest look at the chronic illness journey, this book brings humor, warmth, and real talk to life with invisible conditions. Sometimes laughter really is the best medicine — especially when paired with empathy and truth.
Buy on Amazon: https://www.amazon.com/stores/Alpha-Health-Alliance/author/B0F6M83N4B
Echoes of the Body
A powerful reflection on living in a body that doesn’t always cooperate. This collection of stories, insights, and lessons speaks to anyone navigating illness, identity, and resilience. Raw, honest, and deeply human.
Buy on Amazon: https://www.amazon.com/stores/Alpha-Health-Alliance/author/B0F6M83N4B
Letters to the Newly Diagnosed
A Journey of Strength and Hope
For those just beginning their journey with rare, chronic, or genetic illness, this book offers heartfelt guidance and encouragement. These short letters bring comfort, clarity, and strength when the path ahead feels uncertain.
Buy on Amazon: https://www.amazon.com/stores/Alpha-Health-Alliance/author/B0F6M83N4B
Letters to the Broken Man
Hope, Honesty, and the Real Fight to Stay Alive Inside
Written for men living with chronic illness, injury, or deep emotional wounds, this book is a call to honesty, healing, and reclaiming your worth. Vulnerable, empowering, and deeply needed.
Buy on Amazon: https://www.amazon.com/stores/Alpha-Health-Alliance/author/B0F6M83N4B
Understanding the Unseen
Book One of the “Unseen” Series
The first in a powerful five-part series, Understanding the Unseen explores life with invisible illness through stories, perspective shifts, and quiet truths. This series is for those who want to be seen — and those who want to understand.
Buy on Amazon: https://www.amazon.com/stores/Alpha-Health-Alliance/author/B0F6M83N4B
Understanding the Burden
For caregivers walking the unspoken journey beside those who suffer.
This book honors the quiet strength and emotional weight carried by caregivers—often without recognition or rest. It provides emotional support, stress management tools, and real-world insight into the caregiving experience, reminding readers that they are not alone, and their compassion is both powerful and essential.
Buy on Amazon: https://www.amazon.com/stores/Alpha-Health-Alliance/author/B0F6M83N4B
Understanding the Dismissal
A call to action for advocates and healthcare providers to listen better and do more.
This volume confronts the harm caused when patients are ignored, misdiagnosed, or dismissed. Through heartfelt storytelling and informed strategies, it challenges the culture of healthcare and equips providers and advocates to build trust, improve communication, and restore dignity in care.
Buy on Amazon: https://www.amazon.com/stores/Alpha-Health-Alliance/author/B0F6M83N4B
Understanding the System
Your guide to navigating chronic illness, disability, and the healthcare maze.
This book breaks down the confusing systems that so many patients face — from doctors and hospitals to insurance and disability benefits. Whether you’re newly diagnosed or deep in the process, Understanding the System offers clear advice, emotional support, and real-life insight to help you stand strong and move forward with confidence.
Buy on Amazon: https://www.amazon.com/stores/Alpha-Health-Alliance/author/B0F6M83N4B
Understanding Each Other
Relationships, communication, and connection after diagnosis.
Chronic illness doesn’t just affect the person diagnosed — it impacts partners, family, and friends too. Understanding Each Other is an honest look at how relationships shift under the weight of illness, offering support, tools, and encouragement for both patients and their loved ones. This book helps you navigate hard conversations, rebuild trust, and rediscover what it means to stand together in the face of change.
Buy on Amazon: https://www.amazon.com/stores/Alpha-Health-Alliance/author/B0F6M83N4B
Empowerment
Advocating for those with chronic illnesses.
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